27 Apr A Glorious Discharge & Crayons For Lunch
Today was Esmé’s 1 year review at Manchester Genetics.
Following the return of her results, we agreed a review as she turned one. This would give Kay, the geneticist that we see, a change to observe, weigh and measure her.
After a quick coffee stop on Wigan (during which Esmé shouted ‘dada’ at a Gerard Depardieu lookalike causing much laughter and lip licking from the big man himself) we boarded the train to one of my favourite places ever.
Despite having to sit on the floor all the way there (seriously mums, drill some manners into your little men before they become blind eye turners to those more needy than them. I’m not entitled to a seat but you would think that good manners would prevail) the 25 minute journey sped by.
After arriving at St Mary’s Esmé had a grand old play in the waiting room, even doing some more walking. I hoped and prayed she would ‘perform’ for Kay like this and she could see how she has not only hit but also exceeded certain milestones.
Kay agreed that besides looking a little different (and by that I must stress I think she is BEAUTIFUL she just looks more like a toddler than a baby), her facial asymmetry actually means nothing.
Aside from being small she is perfect.
Besides a phone call in 12 months we don’t need to return to the genetics team. We can close this chapter and start a new one.
Whilst she will still undergo endocrinology testing, the more serious of the potential diagnoses have been ruled out.
Esmé stole a toy from the waiting room.
I forgive her.
I will post it back but I thought it is some recompense for being photographed and measured like she is some forensic evidence.
We celebrated with a very very cheeky Nandos.
Esmé ate some crayons. I look forward to the technicolor consequences and am delighted that my daughter will be crapping rainbows.
I’ve made some huge decisions recently.
I won’t be returning to my main business as I always planned to. I’m allowing myself to be bought out. I have no room left in my heart for it.
My babies take up all the space and if I have to take a minimum wage job to afford me more time with them then so be it.
I left my ego on the steps of St Mary’s today.
I’m not ready to leave my rainbow pooping toy stealing zombie walking miracle just yet.
I should have been enjoying Esme from day one.
I have plans for a venture that will suit this time together.
Do I have ‘The Fear’? Absolutely! Will I start selling Younique or Forever Living? Will I balls!!! I’m going to make my own way.
A wise lady said to me recently when I pointed out that I’m not a great business woman:
“but you are a great entrepreneur”
Like the last time I will use the fire in my belly that is being with my beautiful girls to become a success.
You can’t put a price on time.